Oh George! If you guys didn't have bad luck you wouldn't have any luck at all! I hope she is going to be able to tolerate the new drug. I know some people here who are on it, and it is working really well for them. Keep us posted.
Yep, you summarised it perfectly...!:frown:Oh George! If you guys didn't have bad luck you wouldn't have any luck at all! I hope she is going to be able to tolerate the new drug. I know some people here who are on it, and it is working really well for them. Keep us posted.
Thank you to everybody, Merissa reads these posts and she gets overwhelmed but I have to make reference to you Larry (ljpilcher@suddenlink) and your wife's situation.So sorry about your helper. I can sympathize with you. My wife also is in almost unbearable pain 24/7. I started with Knee replacement surgery. Severe burning all the time. Four Doctors told her it was a pinched nerve in her back (Neurological testing seemed to confirm that). So she had the back surgery to fuse the vertebrae on either side and relieve the pressure. No help for the Knee and now has the same pain in her back. She never got involved much in the woodturning but none the less she is still my helper.
Hi Sharon,George, how is Merissa doing now. Haven't seen an update in a while. Hope she is still doing well. I think of both of you often. Give her a hug for me
Yeah, Merissa still has to take the Methotrexate injection every week, that is a "condition" to have the new treatment approved, however, the doctor prescribed her some tablets that she needs to take 4 hours after the injection, that cancels most of the nasty side-effects of the Methotrexate so, if she gets sick all of her RA medications has to stop to be taken...!Yeah, I have the same problem with the Remicade and Methotrexate. I have to go off them if I am sick with anything. Fortunately, I seldom have to be off for more than a week. A combination of Naproxen and Tylenol plus the Lidocaine patches and cream get me through the rough spots.
Not having the nasty side effects is certainly a blessing and while Merissa's Methotrexate afterwards tablet helps a lot, the same can not be said for this new treatment she is on, most times for the first 3 or 4 days of the injection I give her, she gets pretty sick, doesn't eat and her body simply doesn't want to function, she had her last injection this last Friday and she has been struggling since, today is Monday and still going, for some reason this time got her a little harder than normal...!Merissa makes me realize just how blessed I am. I get no side effects from my methotrexate shots, no side effects from my remicade, and the combination of the two have kept me in remission for almost 15 years. Only when I have to go off my meds because of an illness do I have problems with pain from the RA.
I had Pneumonia in February, and had to go off the meds for about two weeks. That's when the lidocaine and naproxen/tylenol come in to play. Unfortunately, I got the pneumonia just a few days before my remicade infusion was due, so I was at the very end of the meds cycle. So it nailed me pretty good. It took about a month after getting back on the meds to be back in full remission. Now if they could just come up with something for plain old osteo arthritis that works as well. The lidocaine cream and patches are very helpful for osteo arthritis pain as well.