You are both in our thoughts and prayers. I am a true believer in the power of prayer. I am also a believer in the reason you have Mr Anonymous in your life is because you have done and are doing things that merit that. Good people draw good people.
Thank's Brian,George, Sorry to hear about Merissa, is not well again.
It is hard to believe it is two years since that previous Post, it only seems a short time ago.
It is annoying that the Health Department has Restrictions and Protocols for Prescribing Specific Medications for Certain Conditions.
As you pointed out it is designed to ensure that the application of drugs is followed for Certain Conditions, to avoid Doctors Leap Frogging Lesser Costing Medications, to Prescribe the Latest and Possibly More Expensive ones ahead of trying the Lesser Costing.
This system does take away from the Doctor his ability to Prescribe what he feels will be best for the Patient Now.
But regrettably, in our System of Government Assistance in Subsidizing the Cost of many Expensive Medication and only charging the Patient a Nominal, or Substantially Reduced, and sometimes a Zero Cost to the Patient.
I think I can recall in the previous post, you had mentioned that her Doctor wanted her to Try a particular Medication, that wasn't on the List of Subsidized Medications, and it would have cost an Arm and A Leg to Buy it, and it was out of your reach.
As in Merissa's situation, she has tried so many, and to have to take one that her Doctor passed over, is most unfortunate. But Regrettably It Is What It Is.
Here's hoping it this one is the one that will do her Good.
My Thought's and Prayers are with you both again.
Hi mate,I got an email ad last night ... something about how a new pill was recently made legal statewide in the USA ... you might be able to purchase it and have it sent to you. It's a mail order "over the counter" type of drug. It MIGHT NOT be legal in Australia, but I hope that it is, as it's pain fighting ability should help her a lot.
It is called Cannabis Oil (yes ... oil made from marijuana). I've seen a lot of documentation concerning the uses of medical marijuana for non-specific systemic pain due to cancer treatments and other similar similar things, whole body joint pain included. You don't smoke this stuff, it's just a pill you take.
Chuck, my husband is diabetic and we have had great luck using Wound Honey to treat wounds that are hard to heal.George,
I can empathize with you on watching your wife suffer and not be able to help. My wife went through something similar starting in 2013... she came down with a blood infection that almost took her from me... she wound up in the hospital for 2 weeks, then transferred to a nursing center for 4 months. I finally got her home and 10 days into her stay at home, she suffered a stroke that put her back in the hospital for again, only to find out the blood infection was back and has settled in her back and around her heart. She had to have open heart surgery to replace a valve in her heart, then home again with a port in her chest for another round of infusion to combat the infection. In the end, she has come out of most of this, but the infection left her with two fused vertebrae in her lower back that makes it impossible to stand for more than a short time. And one of the medications she takes for the heart problems causes tremors in her hands. Plus she's diabetic and since August we've been fighting edema in her right leg. The doctors prescribed wound treatment and over the course of the treatment they used a wound cover that had silicone in it and we're pretty certain she's allergic to silicone... her leg got worse instead of better, looked almost scalded... as of last night, after almost two months treating it with just a surgical gauze, it's finally beginning to look healed.
It's disheartening to watch her suffer through all this.
I know you are going through the same feelings... hang in there and things will get better.
Hi Sharon,Do you know what her new infusion is going to be? Just curious. Hope it works fast!
Give her my love, she is often in my thoughts and always in my prayers.
I am so sorry your helper has been down, but glad that you at least have a treatment plan. Rituximab is one of the meds my son is on for his cancer. His treatment is called R-CHOP, each letter representing a different drug. Costs about $30,000 for each treatment, hopefully ending at six. She will probably get a rituximab/methotrexate combo which hopefully both costs less and has less side effects. Watching a loved on receive these powerful drugs is difficult to say the least. Let her know that she is being prayed for.