Daughter's brain tumor

[Lenny]

It was a year ago today that my daughter Jessica was diagnosed with an inoperable tumor on her brain stem. Since that time she has undergone radiation treatment and chemotherapy. On December 16th she had her most recent MRI and they were unable to see the tumor it had shrunk so much.

Our good news was short lived as the next night she started having terrible pain.
Trips to the ER, overnight at two hospitals,discharged and sent home and told she would have to manage the pain. Finally, thanks to her oncologist, she was admitted to the hospital here in Augusta.

The chemo has caused ulcers in her stomach but there's more than that going on including pancreatitis. They still aren't sure. She hasn't been able to eat, restricted to clear liquids, she has lost over 20 lbs. They have done just about every test, some twice, but they may do another that would hopefully determine if it might be autoimmune pancreatitis. She's still in a lot of pain but it's being managed at least. Closing in on one month!

Hoping they figure it out soon ! If not she may be sent to the Layhey Clinic.

That one day of celebrating good news sure was nice. Hope to be back there again someday!

 

[Tieflyer]

Continued prayers for you, your daughter and family.

 

[thebillofwrites]

My thoughts and prayers are with you and your family.

 

[stonepecker]

Prayers for your family and extra prayers for Jessica.

 

[kovalcik]

I can relate to what you are going through. My daughter survived cancer at 16 years old but is in pain from the damage from the tumor and treatments that saved her life. She is now 24 and still dealing with the after effects, though still cancer free. It is definitely bitter sweet. You and your family will be in my thoughts and prayers. I hope they are able to manage the pain and find the cause.

 

[Russknan]

Oh, Lenny. It doesn't get any closer to the bone than your child. Hope you can feel the support from here. Russ

 

[JohnU]

I'm sorry to hear this Lenny. My thoughts and prayers go out to you and your family in hopes for a speedy recovery for you daughter.

 

[glenspens]

Thoughts and prayers for you and family Lenny

 

[Band Saw Box]

Lerry, Evelyn and I will keep your daughter, you and all of your family members in our prayers.

 

[seamus7227]

Still praying for Jessica daily Lenny, thanks for the update!!

 

[greggas]

Lenny;

Sorry your daughter has had to go through so much. I hope she, and your family have some good news soon.

If she has to go to the Lahey rest assured that is a great hospital that has saved my life a couple times.

I have been going there since I was 12 and have the ear of the best docs there....if you ever need any help getting your voice heard there PM me.

Best of Luck

 

[skiprat]

Wow Lenny, that is a devastating situation to be in. My heart goes out to you and yours. I can only wish you guys all my best.

 

[CabinetMaker]

We will keep her and the rest of your family in out prayers.

 

[monark88]

My thoughts and prayers are with your daughter and your family. Hope you find more positive results in the near future. My wife and I lost our daughter and only child to an extremely rare form of G.B. cancer 3 years ago. But there was no hope in our case.

Pray your family and daughter will be well.

Russ

 

[lyonsacc]

Thanks for the update - will continue to pray for her and your family

 

[Lenny]

Just met with two of her Drs. who assured us that at least it isn't a life threatening situation. Her lipase levels, once as high as 1300, are still fluctuating but at 600 today. They are going to proceed slowly, introducing some protein drinks to see how she tolerates them. She's right on the edge of needing a feeding tube ... Hopefully the next couple days will show some improvement. Really tough to see our little girl in pain ... Julie and I have seen enough in the last month to last a lifetime! :frown:

Thank you all for your thoughts and prayers!

 

[penmaker1967]

she and your family is in my prayers

 

[hpm67]

Sorry to hear about your daughter Lenny. We'll keep her in our prayers.

 

[mark james]

My thoughts and prayers are with you. Keep hope - very difficult I know. Almost lost my son when he was 9 wks old - lost 1/3 of his body weight. Came out OK

 

[Glenn McCullough]

We will keep all of your family in out prayers. Keep positive thoughts, it makes a difference.

 

[gimpy]

In my prayers.

God's Peace

 

[jsolie]

Prayers offered up for your daughter & the rest of your family.

 

[jcm71]

My thoughts and prayers for Jessica, you and all of your family.

 

[Monty]

Will keep you and her in my thoughts and prayers

 

[jscola]

Prayers are with your family & daughter

 

[Edward Cypher]

Prayers being sent up for you and yours. Hopefully good news is in the immediate future.

 

[bobleibo]

Lenny
From experience, I know the hardest part for you about this entire ordeal is not being able to wave the "Magic Dad Wand" and make all her problems go away like we all have for our kids. Hang in there.....
Our thoughts and prayers are with your family.
Bob

 

[Jim Burr]

Got your back Lenny...prayers sent.

 

[GaryMGg]

Thoughts and prayers for you, your daughter and the family, Lenny.

 

[PWL]

Thoughts and prayers for all of you Lenny.

PW

 

[Ambidex]

I'm praying for the best Lenny..

 

[Jim15]

She will remain in my prayers.

 

[sanyalsoumitra]

Me and my family would pray for your daughter everyday. May God give you the strength.

 

[dtswebb]

I'm not much for praying, but I'll keep good thoughts going for Jessica and for the family.

 

[ossaguy]

My thoughts and prayers going out to Jessica,and your family.Hoping that they can solve it and she can have a speedy recovery.



Steve

 

[mikellem]

Lenny as the whole forum has your daughter in out hearts and prayers!

Godspeed,

Michael

 

[mywoodshopca]

Our prayers go out to Jessica and the family.

 

[wizard]

Lenny,
My thoughts, hopes, and prayers go out to your courageous daughter, you and your family. In my life, both as physician and parent, I have come to know that the worst pain one can endure is seeing one's child suffer, no matter how young or old. Lenny, I am very happy that her lipase levels are dropping...good sign!
Regards, Doc

 

[mbroberg]

I just can't imagine what your family must be going through. Your family is in my prayers!

 

[low_48]

That sure is a lot for your family to deal with, so sorry Lenny. Hope they can find a way to help her very quickly!