Daughter's brain tumor

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Lenny,
I'm adding my prayers and good wishes to all those already sent from IAP... I know some of what you're experiencing... My wife has been in the hospital and now in a nursing/rehab center since Dec 9.... she came down with a blood infection that sapped all her strength and she's learning to walk and get around by herself again.... She's making good progress, but we're afraid she has another couple of weeks at the rehab center. At 70 it's tough on her to get around.

Keep the faith.
 
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Lenny
Prayers are with you and your daughter. I had Chemo 13 years ago and still suffer from some of the effects. I also had ulcers right after chemo but they are gone now. No where near what your daughter is living with. But still alive. Please tell her to keep her spirits up. The mind can help overcome a lot of issues. Glad the tumor has shrunk. Each day is a battle and at the end of the day she has won.
 
nava1uni said:
Hope she is feeling better by now. Had a friend with the same thing, turned out to be her gall bladder. Will keep sending healing energy to you and your family.
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Her Gall bladder is something they have looked at very closely (and repeatedly). I wished it was her gall bladder at one point. They say that it looks fine with no stones and the ducts of the pancreas look clear.

She is starting to eat some, crackers, cereal, etc. Although w
hen she does it often makes her pain worse. At least the last couple of days she has managed to keep it down. I guess that is progress.
 
Lenny said:
nava1uni said:
Hope she is feeling better by now. Had a friend with the same thing, turned out to be her gall bladder. Will keep sending healing energy to you and your family.
Click to expand...

Her Gall bladder is something they have looked at very closely (and repeatedly). I wished it was her gall bladder at one point. They say that it looks fine with no stones and the ducts of the pancreas look clear.

She is starting to eat some, crackers, cereal, etc. Although w
hen she does it often makes her pain worse. At least the last couple of days she has managed to keep it down. I guess that is progress.
Click to expand...

I know how hard it to see someone you love in pain but progress is progress. We have to be grateful for whatever doses we are given.
 
MrsPTownSubbie said:
Lenny said:
I know how hard it to see someone you love in pain but progress is progress. We have to be grateful for whatever doses we are given.
Click to expand...

Hoping she is turning a corner. She is now eating a little more each day and, by her own admission, feeling better. Doctors are still doing tests, trying to rule out all possibilities no matter how rare.
Click to expand...
 
Unlike her dad Jessie just can't seem to fail a test. Every test they have done has been normal until today. Even today's test would have to be scored an incomplete as they were unable to complete it. Luckily though they saw enough out of the ordinary with her gall bladder that they have a reason to go in and remove it. Her surgery will be tomorrow morning. I don't think the poor girl could go much longer the way things have been. Hopefully this will finally bring her some relief!
 
Lenny,

I am so sorry to hear of the very difficult ordeal your daughter and all of your family have been undergoing. Please know that all of you will continue to be in my prayers.

Take care and God Bless.

Jim Smith
 
I hope someday I can come on here and give a positive update but not tonight. Jessie's lipase levels were back to normal the day after they took her gall bladder ... now they are way back up. They have put in a picc line to get some nourishment into her (she has lost well over 20 pounds now) and tomorrow they will do another procedure to take another look at her pancreas. She is very depressed and sick of being in a hospital bed. Hoping this will be a turning point ... for the better!
 
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still praying for her and you. We have been through a few extended medical issues in our family and know the toll it can take on everyone. God Bless.
 
Sorry to hear that her ordeal continues. I know that is wearing on everyone. You are all in our prayers, Lenny.
Ed
 
My thought's are with you, prayers also... and keeping my fingers crossed that the light is beginning to be seen at the end of the tunnel.
 
Let's hope they've really corrected the problem this time. She's been through a lot, as have you all. We will continue to keep everyone involved in our prayers.
 
Last year on her birthday she was at Dana Farber ... this year once again her birthday wasn't much of a celebration. Jessie has remained at the hospital in Augusta ... going on 7 (?) weeks, or is it 8 now? It's hard to keep track at this point. Julie and I have tried to work some each day and then make the trip to visit her. Her recovery from the last procedure didn't go the way they had thought it would. She has suffered from nausea and been unable to eat much if at all. Still had pain. Last Thursday we met with a team of her doctors and they were perplexed with what to do next. I mentioned that all her symptoms where on the list of withdrawal from the pain meds she had been on now for 8 weeks. It's very scary to see an addict, but that is what she was becoming. The doctors recommended she start on a different anti-nausea med and another to try to stimulate her appetite. Julie stayed with her that night and showed her a copy of the print out of the withdrawal symptoms. As she went down through it she realized she had most if not all of them. I'm happy to say now, just a few days later, she is completly off the pain meds! Today was the first day she really felt like eating. She has picked up a virus that prevents her from having visitors for a few days but is working hard to get up a get moving around, and get eating so they can remove the pikk line. Hoping that she will be released sometime in the next few days if she can continue to progress. It would be a perfect Valentine's Day if we could get her home!

I really appreciate all the prayers and well wishes! Thank You All !!!
 
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