Son recently diagnosed with MS

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sbwertz

sbwertz

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My 46 year old son has recently been diagnosed with Relapsing Remitting Multiple Sclerosis. He is responding well to treatment, but it has been quite a blow to us all. He has two small sons -- 7 and 10 years old. They have found lesions on his spinal cord and brain stem. So far cognitive symptoms have been minor, and have improved tremendously with prednisone and interferon alpha treatments. I'm going to CT to visit next week. I'll keep you posted. Thank you all who have written for your support and for the information you have given us.
 
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Sharon,
My wife was diagnosed in 2002, and she (we) have been living with it since.

You are very welcome to come by if you want, As I live on the Conn line.

PM if you want more info

Jerry
 
Hi Sharon.

I posted part of this in the other thread, but I figured I would share on this post as well.

My brother's wife has been living with MS for many years. She has been lucky to be very responsive to treatments and even had a good remission during her pregnancy a few years back.

My great grandmother had MS but they were unable to diagnose it properly back then. At one point they were able to go back and look at her medical history and realize what it was.

I also work with 2 people with MS and have a close friend who's wife has also been diagnosed. All have varying symptoms and all respond to treatment differently. To some they get by with a minor annoyance, to others it's a daily struggle.

For all of the people in my life as well as all those I have not met yet, I have been riding the MS150 (150-mile bicycle ride) the last few years and raising money to help find treatments and hopefully a cure. This year I'm about to bust through the $1k donations goal and I don't plan to stop raising donations until the weekend of the ride in September. There are many of these types of events (walks, runs, rides, dinners, etc...) throughout the country and I highly recommend getting involved in any way you can. There are great support groups available as well as a wealth of knowledge available online and through your regional chapter of the MS Society.

My best wishes to your son and his family (and of course you).
 
MS affects women more than men. I think that is why they were slow in diagnosing him in the beginning. We are just beginning to find out about this disease, and what it will mean in all our lives. A lot depends on how much cognitive problems he has. He is a PhD in Microbiology at Yale, head of the E-coli Stock Center there. He does research in bactierial genetics as well. If he has few cognitive problems, he would be able to continue to do his job from a wheelchair if necessary. They will probably have to sell their home and move into one that is not two story, and doesn't have an acre of land to tend. I'll know more when I get back from Connecticut later this month. Thank you all for your prayers and well wishes. It helps a lot.
 
That's a tough one Sharon. We always want our children to be the best and have the best. It's tough on the spirit when something like this happens to them. We'll wish the best for him, and good luck on the trip.
 
Sharon,
I hope that your son continues to respond well to treatment. It will be a lot of adjustment I am sure, but they are continuing to find out more about MS all the time. I have a couple of friends with it and although it is a change they are able to continue with their lives. Hope that things work out and I will focus healing energy to you and your family.
 
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