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Old 11-03-2017, 08:54 AM   #191 (permalink)
 
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George,

I am very sorry to hear of you and your wife's difficulties. I will keep both of you in my prayers for a complete recovery.

Jim Smith
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Old 11-03-2017, 08:58 AM   #192 (permalink)
 
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That's excellent news George! Cheers to hoping it continues.
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Old 11-03-2017, 10:58 PM   #193 (permalink)
 
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Happy to hear she is getting some relief! We will continue to pray for both of you.

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Old 07-07-2018, 10:17 PM   #194 (permalink)
 
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George, how is Merissa doing now. Haven't seen an update in a while. Hope she is still doing well. I think of both of you often. Give her a hug for me

Sharon
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Old 07-07-2018, 11:12 PM   #195 (permalink)
 
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George, how is Merissa doing now. Haven't seen an update in a while. Hope she is still doing well. I think of both of you often. Give her a hug for me

Sharon
Hi Sharon,

Well, the new treatment itself is helping her but she has to interrupt it when she comes out with a cold or anything else that makes her sick and these last few months she had to stop treatment a couple of times for about 2 weeks at the time and if it happens when the new injection is getting due that means that the 2 weeks the injection lasts for is almost gone and unless she gets if every 2 weeks Merissa really struggle, is like as the 2 weeks are wearing out, her body tells her is getting time for another shot so, if she has to endure a couple of weeks without the treatment medication on her, she goes backwards and in no time the RA symptoms attacks her badly.

It is difficult to predict if this current treatment is going to continue to work and for how long, the hope is that it does even though it makes Merissa feeling a little sick for the first 72 hours after she gets the injection that I give her but after that, she is OK(ish).

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Old 07-08-2018, 11:51 AM   #196 (permalink)
 
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Yeah, I have the same problem with the Remicade and Methotrexate. I have to go off them if I am sick with anything. Fortunately, I seldom have to be off for more than a week. A combination of Naproxen and Tylenol plus the Lidocaine patches and cream get me through the rough spots.
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Old 07-08-2018, 10:23 PM   #197 (permalink)
 
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Yeah, I have the same problem with the Remicade and Methotrexate. I have to go off them if I am sick with anything. Fortunately, I seldom have to be off for more than a week. A combination of Naproxen and Tylenol plus the Lidocaine patches and cream get me through the rough spots.
Yeah, Merissa still has to take the Methotrexate injection every week, that is a "condition" to have the new treatment approved, however, the doctor prescribed her some tablets that she needs to take 4 hours after the injection, that cancels most of the nasty side-effects of the Methotrexate so, if she gets sick all of her RA medications has to stop to be taken...!

I will look into the Lidocaine patches, they seem to be a good option.

Your willingness to help is most appreciated, thank you...!

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Old 07-08-2018, 10:31 PM   #198 (permalink)
 
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Merissa makes me realize just how blessed I am. I get no side effects from my methotrexate shots, no side effects from my remicade, and the combination of the two have kept me in remission for almost 15 years. Only when I have to go off my meds because of an illness do I have problems with pain from the RA.

I had Pneumonia in February, and had to go off the meds for about two weeks. That's when the lidocaine and naproxen/tylenol come in to play. Unfortunately, I got the pneumonia just a few days before my remicade infusion was due, so I was at the very end of the meds cycle. So it nailed me pretty good. It took about a month after getting back on the meds to be back in full remission. Now if they could just come up with something for plain old osteo arthritis that works as well. The lidocaine cream and patches are very helpful for osteo arthritis pain as well.
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Old 07-09-2018, 05:36 AM   #199 (permalink)
 
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Merissa makes me realize just how blessed I am. I get no side effects from my methotrexate shots, no side effects from my remicade, and the combination of the two have kept me in remission for almost 15 years. Only when I have to go off my meds because of an illness do I have problems with pain from the RA.

I had Pneumonia in February, and had to go off the meds for about two weeks. That's when the lidocaine and naproxen/tylenol come in to play. Unfortunately, I got the pneumonia just a few days before my remicade infusion was due, so I was at the very end of the meds cycle. So it nailed me pretty good. It took about a month after getting back on the meds to be back in full remission. Now if they could just come up with something for plain old osteo arthritis that works as well. The lidocaine cream and patches are very helpful for osteo arthritis pain as well.
Not having the nasty side effects is certainly a blessing and while Merissa's Methotrexate afterwards tablet helps a lot, the same can not be said for this new treatment she is on, most times for the first 3 or 4 days of the injection I give her, she gets pretty sick, doesn't eat and her body simply doesn't want to function, she had her last injection this last Friday and she has been struggling since, today is Monday and still going, for some reason this time got her a little harder than normal...!

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George
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Old 07-09-2018, 09:56 AM   #200 (permalink)
 
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You guys will be in my prayers. You have an inspiring relationship with your wife, and I love the recognition you give her in helping you. That is something that I should be better with my own wife. I hope she feels better soon, and will be back spending time with you again soon.
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